Deciding what to share - a drive to be more open #nhbpm #4

The #nhbpm prompt for this post is "Disclosure" 

...hence masked ball photo, yes it's me... 

I started this blog anonymously. I felt very anxious about the idea of anyone who knows me in "real life" seeing me revealing my vulnerabilities and fears about my illness. I was particularly concerned about this from a professional point of view. I felt that my thyroid condition and my career had to be kept strictly separate.

I "came out" in Jan 2011 with a post entitled "Adventures in Social Media and Who am I Anyway". I think doing that was part of a process of acceptance and coming to terms with the fact that my illness is not something I need be ashamed of, it's just something that has happened to me and that by communicating openly and honestly about it I can help myself navigate the experience and feel better - and potentially also help others.

The truth sets us free.

So these days I am pretty open. You know my name and what I look like. I even shared a couple of most unflattering pictures of me looking extremely sickly on one of my earlier posts this month. Pictures I would previously have hidden and felt a bit embarrassed even to have.  I took them in an effort to see how ill or well I looked. They are a strange little archive, covering a few months of my life when my world was being rocked and I felt very insecure. I would peer at myself down the camera phone lense and then peer at the picture and wonder what the image meant. I have considered doing a post which is made up of all those sad little faces, but I haven't done it as I'd worry what such a post might say about me!

So what do I disclose now - and what do I keep hidden?

I don't blog about my relationship, except to say how adorable my adorable husband is, which he is.

I don't say much about my work, I have never mentioned an employer or client by name.

I keep my Facebook separate, that's a play space for me and I tend not to connect my blog or most of my social media friends (there are a few very special exceptions to this, you know who you are).

Likewise my Linked-in is purely for career networking.

I am vague about my precise location. Safety first.

I don't name my doctors.

I don't name anyone else by name without their permission.

Interestingly, having become a health advocate through the illness and my voluntary work with the British Thyroid Foundation I am starting to consider possible related employment opportunities and in those cases I find I'm showing the blog to potential employers, which may or may not be a good idea but it's a decision I've taken and we'll see where it leads me. Certainly it's not something I'd have done a year ago. Now I feel a profound sense of the value of my experiences of chronic illness and my ability to write about them. I'm driven to being more open. It feels important.

What do you think about how much I share, too much, too little or about the right amount? Have you written about this subject too? I'm so interested in what other health bloggers and readers think about this. Comments as ever are positively encouraged. :)

with light and love

Lorraine

I wish I knew about this, but I don't.... Day 3 #nhbpm

Woo hoo, look at me, posting 3 days in a row for @wegohealth's health blog post month. No comments on any of the articles yet though, which is strange as I can see people are visiting the site. Anyway.....

Today's prompt is: "I don't know about this, but I'd like to...." 

I don't know about biology, I was so uninterested in the subject at school, can you believe, I didn't get it's relevance to me at all! How can teaching be so bad and/or curricula so ill thought through that a reasonably bright young biological being, who was let's face it as self obsessed as the next teenage girl, could go to school every day for how ever many years it was and just not clock that biology had anything to do with me?

In the UK we get to choose what subjects we will study after age 14. Up until then you just study what they tell you and in the first two years of secondary education you do all the sciences. At least that's how it worked in my school days, a zillion light years ago. I think it's still about the same.

My Mother died when I was five, not sure if I've told you that before. That has been a major thing in my life, as you can imagine. Being without a mother growing up was tough as hell. My Dad brought me up on his own. Many traumas: he bought me terrible nylon stripey jumpers to wear and wouldn't sew my Brownie badges on my uniform because he thought cowgum glue was perfectly adequate and was completely disinterested and un-supportive of my regular lobbying to go to dancing classes or majorettes because he knew that meant that he'd then have to do tricky things with sequins and ribbons on shoes for end of year shows and he was having none of it. I got my own back by becoming a punk at the earliest opportunity. I digress, that's all another story.

The reason I mention it in this post, is that I think it's pretty weird, given that my mum had some mystery illness and died so young, that I never had the urge to find out about what makes the human body tick. It's like I had some mental block.

The main reason I refused point blank to consider studying biology is because I knew that if I did they would make me dissect a bulls eye and a dead rat. Everybody in the school knew that was what biology classes entailed. No way. It was never going to happen.

I can't believe it wasn't possible to make the subject more appealing and relevant to me and all the other kids who dropped it at the first opportunity. I feel let down now. So many of my hours and days years at school were spent bored out of my tiny mind. And now I'm so filled with curiosity and awareness of my ignorance. I wish I knew more about how my body works.

I've learned a lot about thyroid disease since my diagnosis three years ago. But there is still lots that I don't know and I learn new stuff all the time. The human body and medicine is this vast and fascinating subject. Even doctors don't know it all, far from it. And I've come to realise that my symptoms have sometimes been alleviated by things other than thyroid hormone treatments. That my condition isn't as simple as being just down to one thing with one simple cure (for a long time I hung my hopes on T3 treatment because so many thyroid patient sites are so focused on that and I kind of caught the bug, but now I realise, that for me, T3 appeared to help a bit for a while but ultimately other things have had a bigger impact on my improving health.

The doctor at the fatigue clinic showed me a fascinating diagram of how all the different systems in the body are interlinked and affect each other. I got the principle but I wish I understood the detail more. I particularly wish I understood how things like nutrients and trace elements work and I wish I could identify a magic supplement I could take that would bounce my health back to being fully functioning. Ha ha, if only it was that simple.

Maybe one day I'll know all the answers..... I'll keep looking for them anyway. I know more than I used to at least, that's a start. Learning all the time.

With smiles. Thanks for reading. Feel free to share any thoughts below.

Lorraine

Day 2 #NHBPM, Inspiring Quotes

We go Health are encouraging health bloggers to post every day in November.  Check out the hashtag #nhbpm on twitter to see how the campaign is buzzing along.

Today I've been prompted to write about an inspiring quote. What I'm actually going to do is share a few different quotes that inspire me and also share a few different sources of further inspirational words, so that if you like the philosophy these quotes come from, you can tap into it yourself. Follow your bliss.

Here's my first quote:

"If you change the way you look at things, the things you look at change." Wayne Dyer (via @innerdelight) 

This is so true, I know, especially through being ill that we cannot always control our lives, shit happens, sometimes and sometimes it's hard to deal with. I get a little cross with those relentless "positive thinkers" you come across sometimes who clearly have never had to deal with anything they can't control and can be so lacking in compassion or understanding for people they perceive as weak or defeatist, who may struggle with health issues or other difficulties. But I try not to let their ignorance get to me, if I have the energy and it feels important sometimes I'll engage them in a little light debate and try and to broaden their view of the world. Other times I've learned that just letting some comments go and not taking on responsibility for trying to change everything that's wrong in the world gives me more peace of mind and lets me focus on the stuff that matters more - and where I can make a difference.

But there's a grain of truth in what those people believe. When I look at my illness from a poor me perspective I feel bad, when I actively choose to look at the positive things it has brought me -new friends, wisdom, a calmer more balanced lifestyle, opportunities for creative expression and the chance to support others, a greater appreciation of the love and support I get from my adorable husband, a whole new level of knowledge of how my body works and how to take care of it.... well I start to feel better. In fact I can get a real happy little glow going.  Honestly!

Taking time each evening before I go to sleep to consciously count up all the things I have to be thankful for that day means I snuggle down with a happy smile on my face and drift off into a pleasant sleep. If I allowed my mind to fret and wrestle over the things that had not gone to plan, or issues from the past, or worries about the future, I know I would not feel so tranquil, I would probably not get sleep so easily or sleep so well, I might have different sorts of dreams.  If I don't sleep well the chances are I will feel bad the next day. Good quality rest is important for my wellbeing.

And I know too that allowing myself to get stressed and upset about stuff creates fatigue, it can even create pain in my body as I tense up physically around my tense and angry thoughts. There are times of course when I do get wound up and angsty. Observing myself, afterwards, I now recognise that when that happens the effect is very clear. Angry emotions = feelings of exhaustion later. I seem to be a sensitive soul. When I cultivate serenity, compassion, empathy and acceptance of reality, I feel better and I achieve more.

Every day in every way, my thoughts and the way I look at the world truly shape my reality. I am not in total control, far from it, but I am a conscious being and my consciousness is what I experience and I have choices around where I put my consciousness and what I do with it.

Here's another quote I find inspirational :

"observe yourself, do not judge yourself, that is the highest form of human intelligence" from Jivamukti (? - source uncertain)

I keep coming back to these words. there's something about observation without judgement, acknowledging reality, including the reality of difficult emotions or situations, that somehow can bring about transformation. I got into meditation a few years back. The art of sitting. There are lots of different meditation techniques you can use, the simplest just to sit and observe your breath flowing in and out of your body. It's extraordinary how that simple observation process, switching off the judgmental chatter that flows naturally through our brains, can leave people feeling refreshed and energised.

If you follow the link above and here to the meditation site I built for the group I used to help run in Camden there a few more nice quotes and poems along the same lines as the one from Inner Delight and the Jivamukti one.

Here's a final quote I love and hope you will like too:

"Don't find time for wellness. If you value yourself, MAKE time to move and breathe and feel alive." @soulseedz 

Gorgeous, never a truer word spoken, what an inspiring world we are lucky enough to habitate, so many wonderful people sharing so many beautiful words and ideas we can benefit from.

With love and light.

I hope today's posting  has been worth your while to read. I'm very grateful for you stopping by. I'd love to know what quotes you find inspiring, feel free to share any below, or let me know if you are also writing on this topic for #NHBPM. I'd love to discover your blog if I don't know it already.

Thank you for for being there.

A health bloggers challenge - Why do I do this? #nhbpm

self scrutiny, not always recommended......
(pic from 2010)

This blog is about to go turbo charged boys and girls, stand by, hold on to your hats, a deluge, a veritable whirlwind of health blogging is about to be unleashed. Not just on this blog - health blogs everywhere are ramping up to take part in @wegohealth's National Health Blog Post Month (#NHBPM)...

Read all about the challenge here. You can even sign up to take part, how much fun would that be? All of us writing like dervishes, sharing our stories, raising awareness, rocking the world, making a difference. That Frankensandy got nothing on us! 

As it happens I could do with it not being called "national" health blog post month because I'm not in the nation that's being referred to and I suspect many other participants won't be either - hey Americans, your nation is not the whole world, the internet is bigger than your country! But never mind that, it doesn't really matter.  I'm in the UK, for what it's worth. 

The idea is that we all write a blog post every day during November. Considering I usually write about one post a month, or, erm, okay less than that sometimes.... this will be a stretch I know, but I'm up for it and I'm also excited about reading other bloggers posts. While we're all being so prolific I will make a point of reading more blogs by other people than I usually find time to do.  

The good peeps at We Go Health are providing prompts for each day. I might not always use them as I actually have quite a lot of ideas for things I want to write about, but today, as it's day one, I will stick to the script.

Today's subject is: "Why do I write about my health?"

Back when I was ill-er than I am now I used to sometimes take pictures of myself to try and gauge how ill I looked and whether or not I was getting any better.  As you can see above and below, those are not good  photos! 

Feb 2010, not looking fabulous, feeling small and sickly

April 2010, can you believe I thought I felt better so took this to see how well I looked!  Aaargh!

Not only did I look  like shit. Pardon my language. But I was totally confused. I was used to being this fairly together kind of a person. I was good at getting things done. I was articulate, successful, busy in my life. Okay so for years I'd known that something wasn't quite right about my health, I needed to pace myself more than others, I knew my immune system wasn't great, I was prone to get more colds and stuff than other people. I'd been a sickly child, had allergies and stuff. But basically up until 2009 I was doing pretty well thank you very much. Then I got the diagnosis of hypothyroidism and I thought this was a good thing, that I'd start taking the pills and could expect to feel better than I had done for years because the thyroid disease must have been causing all my previous  low level health and energy issues and now we'd found the cause and tra la la, I could keep on motoring.

Crash.
 
Well sadly it wasn't that simple, what happened then was that I got a whole lot worse before I started to get any better. It's fair to say it's been emotional and life changing. Three years down the line I'm still  not as well as I aspire to be. But to be  honest I'm now not far off it. I've learned tons of stuff about thyroid disease which  has been fascinating and I now know some good techniques for how to manage a chronic health condition and deal with adversity in general. Bizarrely I'm now living in a beautiful house right by the sea which would never have happened if I hadn't got ill and had time to reassess my hectic life, working all hours in London, as I was. So I believe that every cloud has a silver lining and I always try to look on the bright side when I can.

I started to write this blog to share my experiences, to reach out to others and to try and make some sense of what the hell was happening to me. It's been great to have this outlet and wonderful when people have commented that they can relate to how I've felt, or that information I've shared has been useful to them.

I keep writing because it helps me and other people sometimes tell  me it helps them too and that makes me happy. 

Thyroid disease is a bit of a hidden illness. One in twenty of us will get it yet many of us don't even know what a thyroid is until the day we are diagnosed, even then we often get very little info about our illness, how to manage symptoms, or how to keep as well as possible.  

As well as reaching out to other patients I also have a deeply held ambition that I can make a difference to how health professionals view and treat those of us who are unlucky enough to have a hard time with thyroid disease. I love it when a doctor or health policy person tells me they've read my blog and I actively seek out other opportunities to reach those people and get them to think differently about hard to treat thyroid patients. Because we deserve to be taken seriously and we both need and deserve to be supported back to good  health.  I believe that by speaking my truth I'm shining a light on a condition that has been terribly neglected for too long.  That makes me feel good. 

So there you go. My post number one for November, "#NHBPM", I will post again tomorrow. Yes I will. You can hold me to it. If you're doing the challenge too please let me know so I can visit your blog too. Whether you are or not I hope my gruesome pics haven't scared you off. Ha ha. Let me know what you think of this and previous posts. I love feedback. 


with love and light


Hope (Lorraine)

A brave new world, giving feedback to my doctor

Today I did something I've never had the confidence to do before.

Let's start by reminding ourselves who I am. A fairly assertive woman on the whole. Some might say more assertive than most. I'm Scottish for a start and after more than twenty years living in England I've come to realise that culturally the Scots are generally more upfront than the English tend to expect. If I've got something to say I think of myself as someone who will generally say it. Occasionally friends will thump me on the back and say how impressed they were that I spoke out about something other people had been keeping quiet about and that needed to be said. Naturally outspoken, that's me. And I believe passionately in the power of giving and receiving feedback as a fantastic way of bringing about positive change. 

Yet, I have held back on giving a great deal of feedback to my various doctors over the last three years because I have been too afraid. 

I've been afraid that if I gave feedback or complained about things I was not happy about, that my treatment will be compromised, that I will be viewed as a complainer rather than as a vulnerable patient with valid care needs. That the professionals I perhaps should complain about will resent me, that they may even spitefully discharge me and refuse me treatment. I've been afraid that the precious and very limited time I get with my health care professionals could end up becoming an adversarial discussion, focused on their insecurities and need to defend themselves rather than working to find solutions for my debilitating symptoms.

This may seem silly, but I have spoken to so many thyroid patients who sadly have had very bad experiences when they have tried to raise concerns about their care. I have treated all the healthcare professionals I have dealt with with the softest of kid gloves. As I've said before, I find my self using "every inch of my professional communications skills" in each appointment, to try and keep them on side and not allow them to feel threatened by my stubbornly hard to treat condition. Call me a scaredy cat, I don't care, I've been ill, I needed to take care of myself. 

I think on the whole most doctors are good and do their best by patients. I am vehemently against the scaremongering and doctor bashing that goes on on many so called thyroid patient advocacy sites. We need to have good relationships with our healthcare professionals and to respect their expertise. However, I acknowledge that there are too many cases (one case would be too many) where patients who desperately need help are treated, frankly, appallingly, for whatever reason. In some cases it seems that some GPs are not as knowledgeable as they should be about the treatment guidelines for hypothyroidism, in many other cases it seems that doctors are highly stressed and short of time and not giving the attention to the individual patient's care that is needed. Often patients feel fobbed off and frustrated and in some cases years can go by with their activities of daily life severely affected as they languish under ineffective treatment and lack of support. This needs to stop. 

I've had a few unfortunate experiences since my diagnosis. Some I've shared on here (remember the outrageous letter I got from UCH that couldn't go unchallenged as they'd put in writing that I was so tired and forgetful I'd stopped taking my medication entirely, which was nonsense!), many I haven't. Like I said, I don't want to be seen as a complainer and if I complained about everything that has not been right this blog would perhaps have rather a different flavour to it.  I know the effect that reading endless complaints from other people (usually on those other negative sites referred to earlier) has on me, it makes me feel anxious and comes across as counter productive. Negativity is not the way to improve anything. People have a tendency to stop up their ears to criticism, if given it has to be given carefully and selectively, if you want the other person to take it on board. 

So now, ta daaa! I feel much better. And I have my new endocrinologist in part to thank for this (new since the start of this year). He is the one who persuaded me to trial a reduction in my T3 medicine and then to stop it entirely. He did this very gently, taking into consideration my fears of becoming unwell again as I believed the T3 was helping me. He explicitly told me I can go back on it if my health deteriorated without it and he gained my trust. So far so good. I am glad I listened to him. Coming off T3 meds has been a revelation.  I realise that I have less joint pain and I my energy levels and temperature both feel more normal without it. I hope being on it for so long has not set me up for long term bone problems. 

I say I only thank the endo in part because I also believe that changing my diet has had a very significant impact on my health overall and it is coincidence that the two major changes happened around the same time. When I was on thyroxine only before (aug'09 - July'10) I was not well at all. Now I am on thyroxine only and also gluten free, low carb and eating very little sugar I feel pretty good, so I think the extrapolation that the dietary change is significant makes sense (though I accept it's not proven and I may be wrong).  And I'm none too impressed that this course of action was never seriously suggested to me by any of my doctors, I had to discover it for myself. But that's not what I complained about today!

The reason I complained today is because I recently read the new NHS Constitution and also had a couple of very interesting conversations with the newly appointed Director for Public and Patient Voices at the new NHS Commissioning Board.  You may scoff but I found both totally inspiring. I am very concerned about resource levels in the NHS but I believe that the new constitution outlines a vision and determination  to transform it in a way that has a chance of turning out to be very positive for all of us. And one of the things that this transformation is dependent on is a culture of feedback.  Patient voices need to be heard and can make a real difference.  Doctors and patients should work in respectful partnership and both sides need to take responsibility for what they can change and make better. 

I'm not even going to bother telling you what I complained about. Not in detail anyway, it's not that interesting. I'll just say that I had an experience of trying to contact my doctor which was frustrating because he basically didn't respond and I ended up being given medical advice by his secretary which I believe was perfectly good advice and was in line with what I believed was the right thing to do, so I'm doing it, but I felt that as a level of care from the clinic the whole thing was not what it should have been. And while I'm an assertive and relatively knowledgeable patient and so was able to navigate the situation and come away with a solution which I believe will be fine, I dread to think how someone less confident or knowledgeable may have fared, or felt. So I told his secretary to give him the feedback that I was not impressed (which I doubt she'll bother to do) and I also told PALs, to be sure he got the message.

I did it because I felt well enough to do so, whereas in the past, when I was a little soggy brained poorly thing, complaining was just beyond my capabilities, and because the NHS Constitution tells me it is my duty as a patient to give feedback so that doctors can reflect on the care they are giving and perhaps change how they operate in the future. It's all about trying to make things better for everyone. 

I'll let you know if he discharges me, or gives me a hard time about it when I see him next! (in January.)  I do have a teeny bit of residual fear but hope that I'm just being silly. Hopefully it won't be an issue and perhaps the next patient may have a better experience if they have a concern and contact the clinic about it as a result of me speaking out. 

What do you think? Have you ever complained to your doctor? What was your motivation? What response did you get? Was it worthwhile? Have you seen the Patient Opinion site and considered using that as a way of giving feedback? Have you read the NHS Constitution or otherwise tried to get your head round the massive new structural changes taking place in our NHS? Please feel free to comment or leave any other feedback below. 

*waving and smiling*

Getting better all the time. :) 

Hope

Event press release, 10th Nov, Thyroid and Pregnancy

Welcome to my blog. This post consists of the press release for an event I'm organising next month - perhaps you could share it, it's on an important topic - thyroid and pregnancy.... read on..... 

The London group of the British Thyroid Foundation (BTF), a national patient charity, is organising an event for thyroid patients and people with an interest in thyroid disorders - and particularly their effect on pregnancy - at the Royal Free Hospital, London on Saturday, 10^th November 2012.

Thyroid disease is very common and usually easily treated - one in 20 people in the UK have a thyroid disorder - yet it is largely a hidden disease and some cases can have a devastating impact on people’s lives.

Thyroid disorders are prevalent in women of child-bearing age. Uncorrected thyroid dysfunction in pregnancy affects both fetal and maternal well-being. 

We need more thyroid hormones during pregnancy and in some cases a previously unnoticed thyroid disorder can be worsened when a woman becomes pregnant, risks include pre-eclampsia and miscarriage. 

All women considering pregnancy, and all health care professionals working with pregnant woman, should be aware of possible thyroid related issues.  Patients with thyroid disease need to be closely monitored during pregnancy.

The effects of thyroid dysfunction can also extend beyond pregnancy and delivery to affect intellectual development in the early life of the child.

The speaker at this event will be consultant, Dr Stephen Robinson, of St Mary’s Hospital in Paddington, who will be talking about “Thyroid disorders and pregnancy,” and will also answer questions from the floor on all aspects of thyroid disease.

Dr Stephen Robinson has a breadth and depth of experience in endocrinology and general internal medicine. He has contributed to specialist working groups at the Royal College of Physicians and Obstetricians, contributed to the confidential enquiry into maternal health and is also Chair of the thyroid cancer tumour working group.

Where and when

The event will take place on Saturday, 10^th November, from 10am to 1pm, in the Sir William Wells Atrium, Royal Free Hospital. For more information or to book a place, contact Lorraine Williams on lorrainewilliams@btf-thyroid.org. Refreshments will be provided. Donations will be welcomed, with a suggested minimum of £3 per person, to help cover the costs of the event.

The Royal Free Hospital is six minutes walk from Belsize Park underground station, 14 minutes from Hampstead underground station, and just four minutes walk from Hampstead Heath railway station. The meeting will be held in The Atrium which will be clearly signposted from the main entrance. Parking space is extremely limited in the local area so attendees are encouraged to use public transport.

Notes for editors

The BTF London group was launched in 2011 and this will be our sixth event. We usually get around 40 attendees and feedback on all events so far has been very enthusiastic. For more information about this event or future activities, or to access thyroid patient case studies and feature ideas, contact Lorraine Williams on: lorrainewilliams@btf-thyroid.org.

Lorraine writes a popular blog about her experiences with thyroid disease and running the BTF London group Thyroid Hope

TheBritish Thyroid Foundation (BTF) is a national patient support charity dedicated to supporting people with thyroid disorders and helping their families and people around them to understand the condition. It has been established for 21 years and works closely with medical professionals from the British Thyroid Association and the British Association of Endocrine and Thyroid Surgeons. Website www.btf-thyroid.org

More information on thyroid and pregnancy can be found via The British Thryoid Foundation, Thyroid in Pregnancy Campaign  

Danielle's story - congenital hypothyroidism

Danielle very kindly shared her story with me last year. I hope it will be helpful and reassuring for anyone else diagnosed with congenital hypothyroidism, or who has a child with this condition.  

British Thyroid Foundation website also has telephone support contacts dedicated to talking about children's thyroid disorders so you may also want to follow up with them. 

Here is Danielle's story, as told to me in 2011:  

Danielle and baby Joseph, 2011

"I was diagnosed with hypothyroidism when I was around 6 weeks old, at a time when testing at birth wasn't carried out. My parents were concerned that I wasn't active or growing quickly, and the GP suggested a test. 

As a baby I was given thyroxine in liquid form, but I only remember later on, having 2 pills crushed and put in with cereal and milk. I quite liked the little ritual and though I was aware of my condition, I didn't see it as an illness, and certainly didn't feel I was different to my friends.

However, when on holiday, for example, I was frustrated when being made to get completely dry after swimming and before I could go and play, as the difficulty in keeping warm would make me shiver uncontrollably. On the whole, I had no fear of doctors, hospital or needles, and apart from a brief phase of getting almost hysterical, I was happy to go for blood tests- I still have an interest in medicine which I think started then. I certainly felt well-informed and was never worried by the idea of having hypothyroidism as it was always clearly explained that it is treated very simply with daily tablets. 

As a teenager I had phases of poor compliance, which were serious enough to affect my health. The resulting forgetfulness probably exacerbated the problem and although the doctors wanted to manage my hypothyroidism carefully during that time, in retrospect I don't feel I took the condition seriously. In my 20's I was still guilty of forgetting a dose here and there, although I
never felt the symptoms of under-replacement particularly badly. On one occasion the GP remarked that he was very surprised to see a very lively and energetic person in front of him given the very low t4 and very high (20 to 50) tsh levels on the recent blood test.
 When we were trying to conceive, I discovered that it could take longer as a result of the condition, though I was pregnant within a year of trying, and I found it helpful to read about other womens experiences of being hypo and having children. Of all the things I could do for my baby's health, being diligent with taking thyroxine would be the most important and since I
conceived, my attitude has been different as it's no longer just myself I'm responsible for.

 I was under consultant care throughout pregnancy and had frequent blood tests and extra growth scans, which thankfully showed that the baby was growing and developing normally.

In February I gave birth to Joseph, a perfect little baby boy (7lb 13 oz). When it came to his heel prick test results I was confident that if he did have hypothyroidism, it would be fine and we would know how to make sure he was healthy. He isn't hypothyroid, and I've since found out that the form I have isn't thought to be hereditary. 

With good gp care and access to clear information about the condition, and how it affects pregnancy and the growing baby, starting a family has been the same adventure as anybody else's, and hypothyroidism hasn't caused us any worry. Joseph being successfully breastfed for 6 months and is a very healthy boy with no allergies or other issues, and is an exceptionally smiley and good-natured baby! We're very lucky.” 

Thank you Danielle - it is so good to hear your experiences and Joseph looks adorable! He must be getting bigger now, time flies.  I finally posted this today in response to a question about congenital hypothyroidism elsewhere on the blog. I think Lisa will be really interested to read your story and something tells  me that it will be really helpful for others to read too - it is very good of you to share it. 

Love and light to all reading this. Comments are warmly welcomed, as ever. 

Hope